MAV or something else?

[LisaP]

What about a VRT for this? Does the doctor think that might help? Did he mention a low dose of benzo?

[Coug]

They did not say. I have tried Valium and it did work but I don't want to take that all the time and I want to get to the root of the problem. Can MAV vertigo be constant? like 24/7? when I wake up, its like im floating and turning. When I'm sitting on the couch, it feels like waves are rolling through my head.

THe dizziness has lasted for 5 months and not let up. Could MAV really do that constantly? It must be the cyst. HELP

[LisaP]

I'm no doctor, but if all of your tests came back negative, then you know that the vestibular nerves themselves are not damaged.

Did you discuss MAV with the doctor? I don't have MAV, so I'm not really sure how that works but basically it's a migraine where instead of pain, you get vertigo.

You are in a tough spot. Tell me if I'm wrong in the way I interpretted this. It seems like the doctor is saying that surgery to remove the cyst is the only way to stop the dizziness, except being on the valium. And the cyst is pressing on something and that is the cause of the dizziness.

So your decision is to be on valium and be dizzy free, but it's basically a bandaid, or to have surgery but risk deafness in that ear?

Did I get that right?

[Coug]

That's pretty right on. He said it won't 100% be certain that it will stop the dizziness though. It just seems too coincidental because it is on the cerebellum where your brain controls balance.

The risks of the surgery are deafness in that ear and maybe facial palsy. It's just really hard to make the right choice. I am supposed to go back to school in a week and I need to make a decision soon.

[Coug]

So this is pretty much to follow up and let everyone (if anyone besides lisa has followed) what has been going on with me.

I met with the neurosurgeon yesterday and he said that the mass is the cause of my problems. It is right where the nerve enters the brain as well and disrupting part of my cerebellum. He said that we should go ahead with surgery. So now I am entering a whole new realm but hopefully it will cure my vertigo 24/7. Do people with mav have 24/7 symptoms? Like right when they wake up, they feel like they are floating?

Does anyone here have experience with acoustic neuromas?

[LisaP]

Coug, I'm sorry it's the mass and surgery is involved. I'm probably going to end up with one myself, but on a tumor on my pituitary. I'll say a prayer for you. Please keep us updated on what's going on.

[Jill]

Moving thread ~